脑的因果关系:父母的信仰和相关的情绪
Renée Smyth1,2, Susan M Reid1,3, Kate Paton3
1Department of Paediatrics, Royal Children's Hospital, University of Melbourne, Melbourne, Victoria, Australia.
Developmental medicine and child neurology
|July 7, 2023
概括
患有脑 (CP) 的孩子的父母非常重视了解孩子的病因. 大多数家长认为产后事件导致了孩子的脑膜梗塞,经历了严重的情绪困扰,突出了需要更好的支持.
科学领域:
- 儿科神经学 儿科神经学
- 发育儿科 发育儿科
- 儿童心理学 儿童心理学
背景情况:
- 大脑 (CP) 是一种复杂的发育障碍,影响运动和姿势.
- 了解CP的病因对于家长应对和寻求适当干预至关重要.
- 父母对因果关系的信念可以显著影响情感福祉和家庭动态.
研究的目的:
- 调查有关脑 (CP) 原因的父母信仰.
- 探索CP的孩子的父母与这些因果信念相关的情感反应.
- 为了确定父母为孩子的CP诊断归因的具体因素.
主要方法:
- 一项调查对226名1-18岁儿童的父母进行了调查,他们被诊断患有CP.
- 参与者从维多利亚州脑性麻登记处招募.
- 该调查评估了人们对一般性和儿童特异性CP原因的信念,包括遗传,产后和怀孕相关因素,以及父母的态度和情绪.
主要成果:
- 92%的家长认为了解孩子CP的原因很重要,但13%的家长表示不确定.
- 产后缺氧 (81%),怀孕期间的大脑损伤 (73%) 和早产 (66%) 是常见的原因.
- 父母报告了显著的情绪,包括悲伤 (80%),内 (61%),愤怒 (59%) 和困惑 (53%),愤怒与产后事件有关.
结论:
- 父母们非常渴望了解脑的起源.
- 父母对CP原因的归因是多样化的,特别关注产妇内事件.
- 这项研究强调了需要加强信息提供和情感支持的家庭导航一个新的CP诊断.
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