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血液癌症的生存过渡:确定护理人员的经验和支持性护理需求
M Devyn Mullis1, Carla L Fisher2, Amanda L Kastrinos3
1College of Medicine, University of Florida, Gainesville, FL, USA. mullis.md@ufl.edu.
概括
血液癌症患者的护理人员在生存过渡期间面临重大挑战,包括适应"新常态"和应对不确定性. 针对性支持对于这些家庭成员在整个癌症护理过程中至关重要.
科学领域:
- 在瘤学瘤学.
- 护理人员支持护理人员支持
- 健康心理学 心理健康心理学
背景情况:
- 幸存者护理传统上侧重于癌症治疗后的患者.
- 癌症护理连续是复杂的,涉及延长和维护疗法.
- 血液癌症患者的生存过渡给护理人员带来了独特的挑战.
研究的目的:
- 探索血液癌症患者在生存过渡期间的护理人员的经验.
- 了解护理人员面临的多方面的调整和挑战.
- 确定在这些过渡期间对支持性资源的具体需求.
主要方法:
- 与血液癌症患者的成年照顾者进行了半结构化采访.
- 照顾者根据患者的转变进行分组:新疗法或治疗结束.
- 用专题分析和三角分析来比较护理人员的经验.
主要成果:
- 两组护理人员都报告说,通过个人,关系和环境调整,他们建立了一个"新常态".
- 开始新疗法的患者的护理人员经历了不确定性和破坏期望.
- 终止治疗的患者的护理人员报告说,缓解与担忧混合.
结论:
- 幸存者过渡给照顾者带来了重大挑战,包括重新调整,不确定性和未满足的期望.
- 不同的幸存者过渡组之间存在着不同的细微差别.
- 在整个幸存者之旅中,为护理人员开发量身定制的支持资源至关重要.
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