在发育障碍的诊断途径上的可访问性,连续性,有效性,灵活性和提供者-家庭关系的障碍和促进者
Mélina Rivard1, Marjorie Morin1, Corinne Rochefort1
1Université du Québec à Montréal, Canada, 100 Sherbrooke E Street, Montréal H2X 1C3, Canada.
Research in developmental disabilities
|July 9, 2023
概括
导航发展障碍诊断的父母发现系统障碍和个人因素影响了他们的旅程. 父母自闭症轨迹评估 (ETAP) 模型有效地将这些经验用于研究和服务改进.
科学领域:
- 发展心理学 发展心理学
- 医疗保健服务研究 医疗服务研究
- 家庭研究 家庭研究
背景情况:
- 发育障碍儿童的父母面临着复杂的诊断和干预途径.
- 父母在这个旅程中的主观经验缺乏通过理论框架进行分析.
- 需要一个框架来支持研究,计划评估和提供者对家庭诊断轨迹的反思.
研究的目的:
- 为了检查77名父母的诊断旅程,他们的孩子最近接受了发育障碍诊断.
- 了解父母对诊断过程中的障碍和促进者的观点.
- 评估父母自闭症轨迹评估 (ETAP) 模型的适用性.
主要方法:
- 采用一种混合的定性内容分析方法.
- 分析了父母对障碍和促进者的看法.
- 该分析引用了ETAP模型的五个维度:可访问性,连续性,有效性,灵活性和提供者-家庭关系.
主要成果:
- 父母识别的系统性障碍和促进者与ETAP模型的维度保持一致.
- 父母还确定了超出系统因素的个人辅导者.
- 在理解家长的诊断旅程时,ETAP模型被证明是重要的.
结论:
- ETAP框架对于理解家庭对发展障碍的诊断经验是相关的.
- ETAP模型可以组织诊断服务的研究和结构程序评估.
- 这项研究强调了家长诊断过程中系统性和个人因素的重要性.
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