让黑人参与睡眠医学的策略:从应用社区参与型研究原则的三项研究中得出的教训
April Rogers1, Alicia Chung2, Azizi Seixas3,4
1Department of Health and Human Services, St. John's University Collins College of Professional Studies, Queens, New York, 11432,USA.
概括
社区参与的研究有效地增加了黑人参与睡眠呼吸暂停 (OSA) 临床试验. 在OSA研究中,建立信任和调整策略对于成功招聘和留住员工至关重要.
科学领域:
- 公共卫生 公共卫生
- 健康差异 在健康上的差异
- 睡眠医学 睡眠医学
背景情况:
- 与其他种族/种族群体相比,黑人群体对阻塞性睡眠呼吸暂停 (OSA) 的认识,诊断和治疗明显较低.
- 这种差异凸显了需要有针对性的沟通策略和干预措施,以改善黑人社区的OSA护理.
研究的目的:
- 介绍来自三个社区参与的研究研究 (MetSO,PEERS-ED,TASHE) 的经验教训,旨在解决黑人人口中OSA健康差异.
- 评估社区参与的研究模型在改善OSA教育,检测和治疗坚持方面的有效性.
主要方法:
- 利用了社区参与的研究模式,采用双向决策,在所有研究阶段都涉及社区利益相关者.
- 员工聚焦小组,深入访谈,德尔菲调查和代需求评估,以确保文化适应性和解决社区障碍.
- 审查了三项研究 (MetSO,PEERS-ED,TASHE) 以评估计划的有效性并提取所学到的经验教训.
主要成果:
- 社区参与的战略成功地将黑人群体纳入临床试验,达到近3000名风险人群,并对大约2000名OSA进行查.
- 分发了超过1万份睡眠小册子,提高了社区的意识.
- 确定的主要成功因素包括建立关系,建立信任,确定研究冠军,适应能力和参与者激励.
结论:
- 面向社区的框架促进了积极参与,从而增加了黑人参与者的临床研究.
- 战略性社区参与提高了黑人社区内的OSA意识,诊断和治疗坚持.
- 这些发现强调了文化定制,社区驱动的方法的重要性,以减少OSA健康差异.
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