在ALK阳性肺癌中以患者为主导的倡导
Colin Barton1, Morhaf Al Achkar1,2, Jennifer A Blender1
1ALK Positive Inc., Atlanta, GA, USA.
Translational lung cancer research
|July 10, 2023
概括
ALK Positive Inc.已经从一个支持小组成长为一个全球性的非营利组织,通过宣传和研究资助,改善了形淋巴瘤激酶 (ALK) 阳性肺癌患者的预期寿命和生活质量.
科学领域:
- 在瘤学瘤学.
- 患者倡导 患者倡导
- 翻译研究是翻译研究.
背景情况:
- 阳性肺癌患者的倡导越来越有影响力.
- ALK Positive Inc.从2015年的Facebook支持小组发展成为2021年的501 (c) (3) 非营利组织.
- 该组织的使命是提高全球ALK阳性癌症患者的生存率和生活质量.
研究的目的:
- 提供ALK Positive Inc.的增长,活动和未来愿望的历史概述.
- 突出该组织在患者倡导和促进ALK阳性癌症新疗法开发中的作用.
- 审查ALK阳性癌症患者的切实影响和未来目标.
主要方法:
- 基于作者回忆的历史评论.
- 分析ALK Positive Inc.的演变,服务,研究支持和合作.
- 总结了患者生活质量,治疗开发和全球影响力的挑战和愿望.
主要成果:
- 目前,ALK Positive Inc.已扩大范围,提供患者服务,资助翻译研究和临床试验,并与行业和学术界合作.
- 患者,护理人员,瘤学家,研究人员和行业的合作努力推动了该组织的发展.
- 该组织已经取得了切实的影响,并继续追求改善患者治疗结果的目标.
结论:
- 艾尔克阳性公司在促进艾尔克阳性肺癌患者的护理方面发挥着至关重要的作用.
- 持续的合作和关注患者的生活质量,新疗法和全球影响力是必不可少的.
- 该组织的旅程体现了患者主导的瘤倡导的力量.
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