临床医生因艰难的医疗遭遇而造成的创伤:关于埃勒斯-丹洛斯综合征的定性采访研究的结果
Colin M E Halverson1,2,3,4, Heather L Penwell1, Clair A Francomano5
1Center for Bioethics, Indiana University School of Medicine, Indianapolis, IN, USA.
SSM. Qualitative research in health
|July 10, 2023
概括
超流动的埃勒斯-丹洛斯综合征患者由于临床医生的负面互动而遭受心理困扰,称为临床医生相关创伤. 这导致不信任和焦虑,导致更糟糕的健康结果.
科学领域:
- 医学心理学 医学心理学
- 患者体验 患者体验
- 罕见的遗传疾病 罕见的遗传疾病
背景情况:
- 超移动埃勒斯-丹洛斯综合征 (hEDS) 患者经常报告心理困扰.
- 这种痛苦往往与与医疗保健提供者的负面互动有关.
- 了解这些经验对于改善患者护理和结果至关重要.
研究的目的:
- 探索与临床接触相关的hEDS患者心理痛苦的起源.
- 确定负面医疗体验对患者信任和心理健康的影响.
- 了解如何预防或减轻与临床医生相关的创伤.
主要方法:
- 进行了26次深入的定性访谈,对被诊断患有高移动性埃勒斯-丹洛斯综合征的患者进行了深入的定性访谈.
- 分析了采访数据,以确定患者体验中常见的主题和模式.
- 专注于了解医疗保健互动的累积影响.
主要成果:
- 患者描述了累积的负面经历,导致对临床医生和医疗保健系统失去信任.
- 一个显著的发现是,对寻求未来医疗护理的急性焦虑的发展.
- 这种现象被确定并称为"临床医师相关的创伤".
结论:
- 临床医生相关的创伤是hEDS患者的医疗互动的重要,但可以预防的后果.
- 解决这些负面经历可以改善患者的信任,减少心理痛苦.
- 缓解创伤可能会导致hEDS患者的健康状况改善.
关键词:
生物伦理学生物伦理学临床医生相关的创伤.埃勒斯 - 丹洛斯综合征 埃勒斯 - 丹洛斯综合征这种药物具有阳性性.进行深度采访.医学人类学医学人类学医疗创伤是医疗创伤.创伤后压力症状 创伤后压力症状创伤的症状和症状美国美利坚合众国.更多相关视频
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