基于初级保健电子健康记录的英国研究数据资源:潜在用户的审查和摘要
Lara Edwards1, James Pickett1, Darren M Ashcroft2
1Health Data Research UK (HDR UK), London, UK.
BJGP open
|July 10, 2023
概括
研究人员可以从多个来源访问英国初级保健电子健康记录 (EHR) 数据. 选择合适的EHR数据库取决于具体的研究需求和访问要求,因为选项有很大的不同.
科学领域:
- 医疗信息学 医疗信息学
- 数据科学数据科学数据科学
- 初级保健研究研究初级保健研究
背景情况:
- 英国的电子健康记录 (EHR) 数据格局已经扩大,特别是在COVID-19后.
- 初级保健数据资源对健康研究至关重要.
- 清楚地了解这些资源有助于研究人员选择合适的数据.
研究的目的:
- 为了映射现有的英国EHR数据库可用于研究.
- 概述这些初级保健电子健康资源的获取和使用的关键考虑因素.
主要方法:
- 进行了对英国EHR数据库的叙述性审查.
- 数据从健康数据研究创新门户,网站,出版物和关键信息提供商收集.
- 包括基于人口的,覆盖英国人口的开放式EHR数据库.
主要成果:
- 确定并总结了九个主要的国家初级保健电子健康记录数据资源.
- 这些资源在与其他行政数据的联系方面有所不同.
- 虽然主要用于观察研究,但有些支持实验研究;访问,成本和时间表各不相同.
结论:
- 英国研究人员可以访问多个初级保健EHR数据源.
- 选择标准涉及项目需求和访问物流.
- 英国的初级保健电子健康记录数据格局充满活力和演变.
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