管理护理方面的考虑,以改善ALS患者的医疗保健利用率
1President, W-Squared Group, in Longboat Key, FL.
The American journal of managed care
|July 11, 2023
概括
肌缩侧面硬化症 (ALS) 是一种进展性神经退行性疾病,对患者和照顾者在经济和情感上产生影响. 早期诊断和可访问的远程医疗对于及时护理,临床试验参与和改善ALS患者的治疗结果至关重要.
科学领域:
- 神经学 神经学
- 卫生经济学 卫生经济学
- 患者倡导 患者倡导
背景情况:
- 肌缩性侧面硬化症 (ALS) 是一种致命的,进展性神经退行性疾病,在美国患病率为25,000例.
- 据估计,ALS的国家财政负担为103亿美元,主要是由于广泛的护理人员支持需求和非医疗成本.
- 诊断延迟会对患者的治疗结果,临床试验招聘产生负面影响,并增加整体医疗保健支出.
研究的目的:
- 总结ALS患者及其护理人员所面临的多方面的挑战.
- 突出ALS的财务和情感损失,包括照顾者的负担和非医疗成本.
- 探索远程医疗在改善获得护理和参与临床试验方面的潜在作用.
主要方法:
- 关于ALS患病率,财务负担,诊断延迟和当前治疗选择的文献综述.
- 分析疾病进展对日常生活活动和护理人员幸福感的影响.
- 检查新批准的ALS疗法的成本效益.
主要成果:
- 关节性脊髓炎给患者和护理人员带来了巨大的经济负担,随着肌肉的逐渐衰弱和需要持续支持而加剧.
- 延迟诊断是常见的,导致错过了早期干预和临床试验招生机会.
- 有四种治疗方法已获批准用于ALS,其中瑞卢提供了适度的生存益处,而像PB/TURSO这样的新药显示了双重益处,尽管成本效益仍在审查中.
结论:
- 及时诊断和进入专门的ALS治疗中心对于改善患者的治疗结果至关重要.
- 远程医疗为克服移动障碍提供了一个可行的解决方案,促进及时护理和临床试验参与.
- 虽然新的ALS疗法具有前景,但它们的高成本需要进一步评估成本效益,以确保患者群体能够获得这些疗法.
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