针对系统性红斑狼和系统性硬化症的非药物管理的EULAR建议
Ioannis Parodis1,2,3, Charlotte Girard-Guyonvarc'h4,5, Laurent Arnaud6
1Division of Rheumatology, Department of Medicine Solna, Karolinska Institutet, Stockholm, Sweden ioannis.parodis@ki.se.
Annals of the rheumatic diseases
|July 11, 2023
概括
开发基于证据的非药物治疗系统性红斑狼 (SLE) 和系统性硬化症 (SSc) 的策略. 这些建议强调个性化护理,补充药物治疗以获得更好的患者结果.
科学领域:
- 类风湿病学 类风湿病学
- 基于证据的医学是基于证据的医学.
- 患者管理 患者管理
背景情况:
- 系统性红斑狼 (SLE) 和系统性硬化症 (SSc) 是慢性自身免疫性疾病,需要全面管理.
- 非药物干预在SLE和SSc的管理中起着至关重要的作用,与传统疗法一起.
研究的目的:
- 为SLE和SSc.的非药物管理制定基于证据的建议.
- 引导医疗保健专业人员和患者采用整体和个性化的疾病管理方法.
主要方法:
- 一个包括患者在内的多学科工作组进行了系统的文献审查.
- 制定了建议,根据证据水平和强度进行分级,并通过在线投票达成共识.
- 遵循了欧洲风湿病学协会联盟 (EULAR) 的标准操作程序.
主要成果:
- 为SLE和SSc非药物管理制定了四项总体原则和12项具体建议.
- 关键建议包括量身定制的患者教育,支持体育炼,戒烟,避免暴露于寒冷,光保护和心理社会干预.
- 针对疾病的具体建议强调口腔和手部运动,用于SSc和SLE的光保护/心理社会支持.
结论:
- 开发的建议为个人化和参与性SLE和SSc管理提供了一个框架.
- 这些指南旨在补充药物治疗,提高患者的治疗结果和临床医生与患者之间的沟通.
- 确定了未来的研究和教育议程,以进一步改进证据库和管理策略.
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