意大利儿童癌症幸存者随访计划的现行实践
Monica Terenziani1, Alberto Eugenio Tozzi2, Laura Diaco3
1Pediatric Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Lombardia, Italy.
Tumori
|July 12, 2023
概括
意大利儿科瘤中心对儿童癌症幸存者的长期随访护理 (LTFU) 非常感兴趣,但往往缺乏资源. 这项研究突出了全国范围内幸存者护理方面的差距和改进领域.
科学领域:
- 儿科瘤学 儿科瘤学
- 幸存者护理 幸存者护理
- 公共卫生 公共卫生
背景情况:
- 儿童癌症幸存者的生活质量受到幸存者护理和过渡到长期随访 (LTFU) 的重大影响.
- 基于证据的建议指导对LTFU为幸存者提供护理的评估.
研究的目的:
- 评估意大利LTFU服务的可用性和质量.
- 确定当前的幸存者护理实践中的优点,弱点和差距.
- 评估儿童癌症生存率领域的认识和改进情况.
主要方法:
- 意大利儿科血液瘤学协会 (AIEOP) 的晚期影响工作组与家庭代表合作开发了一个问卷.
- 调查问卷收集了关于当地卫生系统组织,LTFU服务,成人幸存者护理,患者/护理人员信息和护理计划交付的信息.
- 数据从意大利各地的AIEOP中心收集.
主要成果:
- 实现了87.5%的响应率,48个中心中有42个中心回复.
- 大多数响应中心 (95.2%) 表示对为患者提供幸存者护理计划非常感兴趣.
- 无论是否有专门的诊所或专门的员工,都注意到了这种兴趣.
结论:
- 本研究提供了意大利LTFU护理的第一个国家概述,表明了过去十年的进展.
- 尽管对幸存者护理有广泛的兴趣,但许多中心面临资源限制,阻碍了计划的实施.
- 识别这些挑战对于制定有效的未来战略来加强儿童癌症幸存者护理至关重要.
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