"这是一个不同的对话":对儿科家庭临终关怀/息护理访问感知价值的定性分析
Daniel H Grossoehme1,2, Jaime Sellers1, Samuel Accordino2
1From the Department of Pediatrics, Akron Children's Hospital, Akron, Ohio.
Pediatric quality & safety
|July 12, 2023
概括
基于家庭的临终关怀和息护理 (HBHPC) 改善了家庭的沟通,赋权和支持. 护理人员的采访揭示了一些关键主题,这些主题增强了以家庭为中心的对患有严重疾病的儿童的照顾.
科学领域:
- 儿科缓和护理 儿科缓和护理
- 以家庭为中心的护理
- 定性研究方法 定性研究方法
背景情况:
- 家庭托管和息护理 (HBHPC) 对患有严重疾病的儿童至关重要,影响生活质量和护理人员负担.
- 提供者家庭访问是HBHPC的核心,但在旅行和资源分配方面存在后勤挑战.
- 了解家庭家庭访问的价值对于优化HBHPC资源配置至关重要.
研究的目的:
- 从护理人员的角度来描述HBHPC内家庭访问的价值.
- 确定HBHPC为患有严重疾病儿童的照顾者提供价值的关键领域.
主要方法:
- 使用与护理人员进行半结构面试的定性研究.
- 使用了基于理论的分析框架.
- 采访了从儿科四级机构接受HBHPC的儿童的22名照顾者 (2016-2021年).
主要成果:
- 面试产生了6个主要主题:有效的沟通,促进安全,建立关系,家庭赋权,更广泛的视角和负担分担.
- 护理人员确定的主题突出了沟通,赋权和支持方面的改进.
- 平均面试时间为52.9分钟.
结论:
- 特别是通过家庭访问,HBHPC显然改善了家庭的沟通,赋权和支持.
- 这些发现有助于加强以家庭为中心,符合目标的重症儿童护理.
- 护理人员的观点对于理解和优化HBHPC交付至关重要.
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