南非父母的人类能力,他们的孩子有发展障碍
Lumka Magidigidi1, Nicolette V Roman1, Inge K Sonn1
1Centre for Interdisciplinary Studies of Children, Families and Society, Faculty of Community and Health Sciences, University of the Western Cape, Cape Town, South Africa.
在南非,养育一个有发展障碍 (DD) 的孩子给照顾者带来了重大的情感和财务挑战. 有限的社会支持和护理负担阻碍了他们提供足够护理和资源的能力.
科学领域:
- 发育障碍研究 发育障碍研究
- 护理人员支持系统 护理人员支持系统
- 公共卫生政策 公共卫生政策
背景情况:
- 养育患有发育障碍 (DD) 的孩子显著影响家庭动态,需要在日常实践中进行调整.
- 在南非,关于DD的父母和孩子的人类能力的研究存在着显著的差距.
- 了解这些挑战对于开发有针对性的支持干预至关重要.
研究的目的:
- 调查可用于增强DD儿童父母/照顾者的人力能力的支持系统.
- 检查DD对这些父母/照顾者的身体健康和完整性的影响.
- 确定贫困家庭所面临的具体需求和挑战.
主要方法:
- 采用了定性研究方法,利用深度采访.
- 11名1-8岁DD儿童的家长/照顾者参加了这次活动.
- 采用雪球采样和专题数据分析来解释这些发现.
主要成果:
- 父母报告说,由于抚养DD的孩子的要求,他们面临着巨大的情绪压力.
- 财政困难影响了获得适当住房和营养食品的机会.
- 缺乏社会支持和护理负担被认为是主要障碍.
结论:
- 社会支持缺口和照顾负担严重影响照顾者抚养DD儿童的能力.
- 调查结果强调,需要采取政策干预措施,帮助在资源不足的地区的DD家庭.
- 解决这些问题对于改善受发展障碍影响的家庭福祉至关重要.
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