在加拿大获得护理的财务负担为患有硬质皮肤症的人:以患者为导向的,横截面调查
Logan Trenaman1, K Julia Kaal1, Tracey-Lea Laba1
1Centre for Health Evaluation and Outcome Sciences (Trenaman, Munro, Harrison), Vancouver, BC; Department of Community Health and Epidemiology (Kaal), Dalhousie University, Halifax, NS; Clinical and Health Sciences Unit (Laba), The University of South Australia, Adelaide, Australia; Centre for Health Economics Research and Evaluation (Laba), University of Technology, Sydney, Australia; College of Science (Safari), School of Mathematics, Statistics and Computer Science, University of Tehran, Tehran, Iran; Collaboration for Outcomes Research and Evaluation (Aguiar, Harrison), Faculty of Pharmaceutical Sciences, University of British Columbia, Vancouver, BC; Scleroderma Association of British Columbia (Burch), North Vancouver, BC; Patient partner (Burch), Vancouver, BC; Patient partner (Beckett), Kamloops, BC; Department of Obstetrics and Gynaecology (Munro), University of British Columbia, Vancouver, BC; Division of Rheumatology (Hudson), Jewish General Hospital and Lady Davis Institute; Department of Medicine (Hudson), McGill University, Montréal, Que.; Arthritis Research Canada (Hudson, Harrison), Vancouver, BC.
患有硬化皮质症的患者面临着终身治疗的大量自费费用. 与城市居民相比,小社区的居民在获得护理方面承担的财政负担更大.
科学领域:
- 类风湿病学 类风湿病学
- 卫生经济学 卫生经济学
- 公共卫生 公共卫生
背景情况:
- 硬化皮肤需要终身医疗护理和频繁的专家咨询.
- 在加拿大,公共资助的医疗保健覆盖了许多费用,但患者仍然面临相当大的自费费用.
- 地理位置显著影响了获得硬化护理的财务负担.
研究的目的:
- 量化加拿大患有硬性皮肤病的个人的年度自费支出.
- 为了比较大型城市中心和较小社区的居民之间的硬化皮肤病护理的财务负担.
主要方法:
- 在加拿大,一项基于网络的调查对120名患有硬性皮肤病的人进行了调查.
- 受访者报告了包括医疗,旅行,住宿和其他非医疗费用在内的年度自付费用.
- 一个由两部分组成的统计模型分析了社区规模 (大城市与小城市/农村) 对自费总成本的影响.
主要成果:
- 加拿大多发性硬化症患者的平均年度自费总费用为3357美元.
- 在较小的城市中心和农村地区的个人报告较高的平均总成本 (4148美元) 和旅行/住宿费用 (1084美元) 与大型城市中心的人相比.
- 大城市中心的患者报告说,平均总费用 (2678美元) 和旅行/住宿费用 (332美元) 较低.
结论:
- 脊髓硬化症患者承担相当大的自费费用,较小社区和农村地区患者的负担不成比例.
- 医疗保健系统和医疗服务提供者应该探索减少这种财务压力的策略.
- 解决这些成本至关重要,以确保所有多发性硬化症患者平等获得护理.
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