互联网是否足够的信息来源关于 Sarcoidosis?
Katharina Buschulte1, Philipp Höger1, Claudia Ganter2
1Center for Interstitial and Rare Lung Diseases, Pneumology and Respiratory Critical Care Medicine, Thoraxklinik, University of Heidelberg, German Center for Lung Research (DZL), Heidelberg, Germany.
Frontiers in medicine
|July 13, 2023
概括
互联网上关于肉病的信息部分充足,质量适度,在疾病过程和疼痛等关键领域存在差距. 未来的努力应优先考虑通过合作创造可靠的,全面的 Sarcoidosis 资源.
科学领域:
- 医疗信息学 医疗信息学
- 肺部病理学 肺部病理学
- 类风湿病学 类风湿病学
背景情况:
- 患者越来越多地使用互联网获取健康信息.
- 在线 सारकॉइडोसिस资源的可靠性和内容在很大程度上未经分析.
- 沙丘病是一个复杂的系统性炎症性疾病.
研究的目的:
- 调查有关沙尔科病的在线信息的内容和质量.
- 为了评估对 Sarcoidosis 患者的互联网资源的可靠性.
主要方法:
- 搜索谷歌,雅虎和Bing的"sarcoidosis",分析每个引擎的前200个结果.
- 包括与sarcoidosis.is相关的英语免费访问网站.
- 评估网站的可读性,质量 (HON,JAMA,DISCERN) 和内容 (25个关键事实).
主要成果:
- 科学和政府网站最常见 (46%);中位更新时间为24个月.
- 中位数的JAMA和DISCERN得分表明信息质量部分足够.
- 内容分析显示,有关疾病进展,肺外查和疼痛的信息存在差距;行业网站和博客表现不佳.
结论:
- 在线的麻症信息是部分充足的,质量中等.
- 麻症的关键方面在网上往往没有得到充分的解决.
- 医疗保健专业人员,患者和支持小组之间的合作是必要的,以改进在线沙尔科毒症资源.
相关概念视频
Rous Sarcoma Virus (RSV) and Cancer
5.1K
Rous Sarcoma virus or RSV was discovered by F. Peyton Rous in the year 1911 as a filterable transmissible agent that could cause tumors in chickens. He won a Nobel Prize for this discovery in 1966. His experiments clearly demonstrated that some cancers could be caused by infectious agents and led to the discovery of many more cancer-causing viruses in animals as well as humans.
RSV is a retrovirus that contains two copies of a plus-strand RNA genome. Its genome consists of four main open...
RSV is a retrovirus that contains two copies of a plus-strand RNA genome. Its genome consists of four main open...
5.1K
Connective Tissue Cell Types
3.3K
Connective tissue develops from the mesoderm of a developing embryo and consists of cells, fibers, and ground substance: a gel-like material containing large complexes of carbohydrates and proteins. Connective tissue was first identified as a separate tissue family in the 18th century, and Johannes Peter Muller coined the term connective tissue.
Fat cells (adipocytes), smooth muscle cells (myoblasts), and bone cells (osteoblasts) are some connective tissue cell types. Some immune system cells...
Fat cells (adipocytes), smooth muscle cells (myoblasts), and bone cells (osteoblasts) are some connective tissue cell types. Some immune system cells...
3.3K
The JAK-STAT Signaling Pathway
9.0K
Several cytokine receptors have tightly bound Janus kinase or JAK proteins attached at their cytosolic tail. Small signaling molecules such as cytokines, growth hormones, or prolactins bind to the cytokine receptors and initiate their dimerization. The dimerization brings the cytosolic JAKs together that trans-phosphorylate and activates each other. The activated JAKs now phosphorylate cytosolic tails of the cytokine receptors, which serve as binding sites for adaptor proteins such as SH2...
9.0K
NF-κB-dependent Signaling Pathway
7.5K
The transcription factor NF-κB was discovered in 1986 in the lab of Nobel laureate Professor David Baltimore, for its interaction with the immunoglobulin light chain enhancer in B-cells. After more than three decades of study, it is now evident that NF-κB regulates the expression of over 100 genes. Most of these genes play an essential role in the innate and adaptive immune responses as well as the inflammatory responses of animals.
NF-κB-dependent Signaling Mechanism
The...
NF-κB-dependent Signaling Mechanism
The...
7.5K
Asthma-IV: Diagnostic and Management
2.5K
The diagnosis and management of asthma are comprehensive, encompassing clinical assessments, lung function tests, and pharmacological interventions. Here's an overview:
Clinical Assessment for Asthma:
This is the first step in diagnosing and managing asthma. It includes:
Clinical Assessment for Asthma:
This is the first step in diagnosing and managing asthma. It includes:
2.5K
Myasthenia Gravis: Overview and Treatment
1.6K
Myasthenia gravis is a neuromuscular transmission disorder characterized by weakness and increased fatigability of skeletal muscles. It is an autoimmune disease affecting approximately one in 2000 people, where antibodies against the α1 subunit of nicotinic acetylcholine receptors are produced.
These antibodies interfere with the function of the nicotinic receptors in three ways: by binding to the receptor and disrupting acetylcholine binding; by causing cross-linking of receptors which...
These antibodies interfere with the function of the nicotinic receptors in three ways: by binding to the receptor and disrupting acetylcholine binding; by causing cross-linking of receptors which...
1.6K


