建立囊性纤维化学习网络:干预措施以促进大规模的协作和数据驱动改进
Thida Ong1, Dana Albon2, Raouf S Amin3
1Division of Pulmonary and Sleep Medicine, Department of Pediatrics University of Washington, Seattle Children's Hospital Seattle Washington USA.
Learning health systems
|July 14, 2023
概括
囊性纤维化学习网络 (CFLN) 通过数据驱动的协作,提高慢性护理的提供和患者的结果. 这种学习健康网络促进了以患者为中心的改进,并推进了质量改进科学.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 提高质量 提高科学 提高质量
- 学习健康系统 学习健康系统
背景情况:
- 学习健康网络利用组织结构来改善医疗保健.
- 囊性纤维化学习网络 (CFLN) 成立,旨在提高囊性纤维化患者的医疗结果和生活质量.
- 它建立在囊性纤维化社区中现有的资源之上.
研究的目的:
- 描述CFLN的发展和成长.
- 评估CFLN对慢性护理流程和协作基础设施的影响.
- 评估网络在六个关键领域的成熟度.
主要方法:
- 该研究使用网络成熟度网格检查了CFLN的进展,其中包括领导力,治理,质量改进 (QI),参与,数据和研究等领域.
- 收集了关于患者护理访问,注册登记的及时性,协作规划,患者/家庭伙伴 (PFP) 参与以及QI周期的数据.
- 展示了对慢性护理流程和协作基础设施的影响.
主要成果:
- 该CFLN包括36个护理中心,服务于6300多名患者,77%的访问在30天内进入注册表.
- 在93%的访问中,协作访问规划发生,而94%的团队有一个活跃的患者/家庭伙伴 (PFP).
- 在2022年,97%的中心每月完成1-13个QI周期,82%的中心贡献了进度报告.
结论:
- 在CFLN展示了一个成熟的,协作基础设施与先进的共同制作实践.
- 它促进跨学科和PFP领导力,以及一致的数据驱动改进周期.
- CFLN中心处于有利地位,能够适应基于证据的护理变化,并推进QI和实施科学.
相关概念视频
Cystic Fibrosis: Management
195
Cystic fibrosis (CF) is an autosomal recessive disorder that predominantly affects individuals of Northern European descent, occurring at a rate of 1 in 3500. It is caused by a genetic mutation in a gene on chromosome 7, most commonly the ΔF508 mutation, that codes for the cystic fibrosis transmembrane conductance regulator (CFTR) protein. This results in thicker mucus secretions and obstruction pathologies in multiple organs, including the lungs and sinuses.
Sinus disease and chronic...
Sinus disease and chronic...
195
Cystic Fibrosis: Pathogenesis
293
Cystic fibrosis (CF), an autosomal recessive disorder, significantly affects the function of exocrine glands. This genetically inherited disease is characterized by the production of thick and sticky mucus, which can severely affect various organs and systems in the body.
CF is primarily caused by a genetic mutation in a chromosome 7 gene coding for the cystic fibrosis transmembrane conductance regulator (CFTR) protein. The most common gene mutation leading to CF is the ΔF508 mutation,...
CF is primarily caused by a genetic mutation in a chromosome 7 gene coding for the cystic fibrosis transmembrane conductance regulator (CFTR) protein. The most common gene mutation leading to CF is the ΔF508 mutation,...
293
Chronic Pancreatitis II: Collaborative Care
115
The management of chronic pancreatitis is multifaceted, involving a comprehensive approach that includes thorough assessment, diagnostic testing, and a variety of management strategies.
Assessment:
Assessment:
115
Nursing Clinical Information System
823
Nursing Clinical Information System (NCIS)
A Nursing Clinical Information System (NCIS) is a specialized type of healthcare information system tailored to meet the unique needs of nursing practice. It incorporates the principles of nursing informatics to streamline information management and improve the quality of care delivery.
Critical attributes of NCIS include:
A Nursing Clinical Information System (NCIS) is a specialized type of healthcare information system tailored to meet the unique needs of nursing practice. It incorporates the principles of nursing informatics to streamline information management and improve the quality of care delivery.
Critical attributes of NCIS include:
823
Community Based Intervention
66
Community-based interventions in mental health represent a paradigm shift from institution-centered care to treatments embedded within the fabric of local communities. By prioritizing inclusion and leveraging existing societal structures, this approach fosters a supportive environment conducive to addressing mental health challenges while promoting individual dignity and agency.
Foundations of Community Mental Health Programs
Central to the success of community-based interventions is the...
Foundations of Community Mental Health Programs
Central to the success of community-based interventions is the...
66


