采用息护理思维方式是帕金森病的未满足需求
Avery Kundrick1, Olivia Hogue1, Sarah Namrow2
1Center for Neurological Restoration, Neurological Institute, The Cleveland Clinic Foundation, 9500 Euclid Ave, Cleveland, OH, United States.
Clinical parkinsonism & related disorders
|July 14, 2023
概括
许多帕金森病患者不知道息治疗的好处. 超过一半的受访患者从未听说过息护理,大多数人没有得到这些服务.
科学领域:
- 神经学 神经学
- 抚慰性护理是一种缓解性护理.
- 患者体验 患者体验
背景情况:
- 帕金森病 (PD) 显著影响患者的生活,而不仅仅是运动症状.
- 息治疗被认为可以改善PD患者的生活质量.
- 了解患者对息治疗的看法对于有效整合息治疗至关重要.
研究的目的:
- 评估帕金森病患者对息护理的认识和看法.
- 识别在PD患者群体中使用息治疗的障碍.
主要方法:
- 对106名已确立帕金森病护理的患者进行了8个问题多选项调查.
- 患者从四级护理中心的运动障碍诊所招募患者.
- 排除标准包括不到两年的随访或非典型的PD特征.
主要成果:
- 很大一部分PD患者 (50%以上) 对息治疗不熟悉.
- 大多数受访者 (93%) 从未获得过息或宿舍服务.
- 虽然熟悉临终关怀,但50%的人无法将其与息治疗区分开来.
- 37.7%的患者希望与神经科医生进行早期预先护理计划讨论.
结论:
- 患者对息治疗的认识仍然很低,即使在专门的中心.
- 在为PD患者提供息和宿舍服务方面存在很大的差距.
- 患者表达了希望更早地将预先护理计划纳入他们的治疗过程.
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