识别和理解患有低级结质瘤的人如何参与自我管理
Ben Rimmer1, Michelle Balla2, Lizzie Dutton3
1Population Health Sciences Institute, Newcastle University Centre for Cancer, Newcastle University, Newcastle Upon Tyne, England. ben.rimmer@newcastle.ac.uk.
Journal of cancer survivorship : research and practice
|July 14, 2023
概括
低度质瘤 (LGG) 患者广泛使用自我管理策略,包括寻求支持和创造健康环境,以应对他们的病情. 这些发现将有助于为LGG幸存者开发新的干预措施.
科学领域:
- 神经瘤学神经瘤学
- 癌症的生存率 癌症的生存率
- 健康心理学健康心理学
背景情况:
- 低度结质瘤 (LGG) 通常在劳动年龄的成年人中被诊断出来,很少治愈,往往导致慢性损伤.
- 有效的自我管理可以改善LGG患者的临床和心理社会结果,但目前对其策略的理解有限.
研究的目的:
- 识别和理解被诊断为低级质瘤的个体所采用的自我管理策略.
- 探索LGG患者如何管理瘤及其治疗的持续后果.
主要方法:
- 在整个英国招募了一组多元化的28名LGG患者 (22-69岁) 完成了初级治疗.
- 进行了半结构面试,并使用基于癌症自我管理框架的定向内容分析来分析数据.
主要成果:
- 参与者报告了20种类型和123个个人自我管理策略,表明了广泛的参与.
- 最常见的策略类型包括"使用支持"",创造健康的环境"",创造意义"和"自我监控".
- 关键的个人策略包括"接受瘤及其后果"",得到朋友和家人的支持"",重新解释负面后果".
结论:
- 这项研究提供了LGG患者为他们的健康和福祉所使用的自我管理策略的全面概述.
- 鉴定的策略为开发针对LGG患者量身定制的新型支持自我管理干预提供了基础.
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