在状细胞疾病专科护理中实施两项发育查计划
Alyssa Schlenz1,2, Jeffrey Schatz3
1Department of Pediatrics, University of Colorado School of Medicine, Aurora, CO.
Clinical practice in pediatric psychology
|July 17, 2023
概括
对于患有状细胞疾病 (SCD) 的儿童来说,发育查至关重要,以确定神经发育方面的问题. 这些计划展示了查.
科学领域:
- 儿科健康 儿科健康
- 神经发育障碍 神经发育障碍
- 状细胞疾病管理管理
背景情况:
- 患有状细胞疾病 (SCD) 的儿童患神经发育障碍的风险更高.
- 早期识别和干预对于管理这一群体的发展挑战至关重要.
研究的目的:
- 描述SCD专科护理机构中两个发育查计划的实施,协议和结果.
- 确定有效的SCD儿童发育查的经验教训.
主要方法:
- 计划一:对201名患有SCD的儿童进行回顾性医疗记录审查,在2岁和4岁时进行查.
- 第二项计划:对67名儿童 (9-66个月) 的155次查的跟踪数据进行分析.
- 评估的结果包括查结果,家长的担忧和获得服务.
主要成果:
- 两项计划都发现有很大比例的儿童有发育问题 (36-42%的查).
- 对56-58%的确诊儿童提供了后续服务,其中67-75%接受了诊断的神经发育障碍的干预.
- 查工具发现了担忧,即使父母没有表达这些担忧.
结论:
- 在SCD专业护理中,常规发育查是可行的,可以接受的和有效的.
- 灵活,协作式的护理模式和可持续性对于成功的项目至关重要.
- 儿童心理学家在为患有SCD的儿童提供综合护理方面发挥着关键作用.
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