数据提供者与关心的公民之间:在瑞士探索参与精确公共卫生
Nolwenn Bühler1, Annika Frahsa2, Réjane Morand Bourqui
1University of Lausanne, Switzerland.
Public understanding of science (Bristol, England)
|July 17, 2023
概括
准确公共卫生计划的研究参与者有超出利他主义的期望. 他们的参与揭示了礼物,财务和道德经济的混合,影响了参与公共卫生研究.
科学领域:
- 公共卫生 公共卫生
- 生物经济是生物经济.
- 科学社会学科学社会学
背景情况:
- 精确的公共卫生研究依赖于参与者的参与,通常被视为利他主义.
- 了解参与者的期望对于队列研究的可持续性至关重要.
- "临床劳动"的概念强调了参与者所贡献的价值.
研究的目的:
- 探索研究组织者和参与者之间的交流和互惠的动态.
- 分析参与者的期望,以回报他们对瑞士精确公共卫生研究的贡献.
- 识别不同的参与者位置及其基本价值.
主要方法:
- 实证性文章使用一个队列的民族学.
- 通过7个重点小组收集数据,其中有37名参与者 (队列).
- 基于生物经济学和估值研究的文献进行分析.
主要成果:
- 确定了四个参与者的位置:好公民,批判性,关心和自我导向.
- 群体参与,虽然是以利他主义的方式构成的,但涉及到对国家和科学的相互义务的期望.
- 基于礼物,金融和道德经济的深层纠塑造了参与.
结论:
- 参与者的期望集中在关于环境暴露和社会导向公共卫生的强有力的科学证据上.
- 这些发现提供了对准确公共卫生未来至关重要的权益制造的见解.
- 未来的精确公共卫生倡议必须承认并解决参与者的不同价值观和期望.
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