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一项为期8周的基于正念的压力减轻计划的试点评估,用于症状前亨廷顿病患者

Sarah Velissaris¹, Marie-Claire Davis², Fiona Fisher²

¹Statewide Progressive Neurological Disease Service, Calvary Health Care Bethlehem, 476 Kooyong Rd., South Caulfield, 3162, VIC, Australia. sarah.velissaris@calvarycare.org.au.

Journal of community genetics

|July 17, 2023

概括

基于正念的压力减轻计划对于亨廷顿病 (HD) 症状前阶段的个人来说是可行的和可以接受的. 参与者提高了正念技能,报告减少了反和孤立.

科学领域:

神经科学是一个神经科学.
心理学心理学心理学
公共卫生公共卫生

背景情况:

亨廷顿病 (HD) 带来了重大的心理社会挑战,特别是在症状前阶段.
对于患有HD的人来说,仅有有限的心理社会干预措施可供使用或进行研究.

研究的目的:

适应和试点为期8周的基于正念的压力减轻 (MBSR) 计划,用于症状前的HD.
评估计划的可行性,可接受性,对正念技能的影响,以及心理调整.

主要方法:

一个为期8周的MBSR计划被交付给了7名患有症状前的HD的参与者.
使用了对正念,情绪调节,情绪和生活质量的定量测量.
通过采访收集了定性反.

主要成果:

该计划证明了可行性和可接受性,具有高的保留率和参与率.
在核心正念技能 (观察,不判断) 中观察到显著的改善.
定性数据显示,反,隔离,耻辱感减少,对管理具有挑战性的情况的信心增加.

结论:

适应的MBSR程序是可行的和可接受的干预预先症状的HD.
正念技能和心理福祉可能会得到增强,这需要进一步调查.
更大的受控研究是合理的,以确认有效性.

关键词:

抑郁症抑郁症抑郁症亨廷顿病就是亨廷顿病.正念是一种正念.在症状出现前.心理干预心理干预生活质量生活的质量.

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