一项基于网络的关于日本炎症性肠病患者自我管理的调查
Masakazu Nagahori1, Takahito Imai2, Mikiko Nakashoji2
1Department of Gastroenterology and Hepatology, Tokyo Medical and Dental University, Tokyo, Japan.
PloS one
|July 17, 2023
概括
在炎症性肠病 (IBD) 中,自我管理 (SMN) 与更好的生活质量 (QOL) 有关. 实践SMN的日本IBD患者报告了改善的QOL,突出了其在慢性疾病护理中的重要性.
科学领域:
- 胃肠病学 胃肠病学
- 健康心理学 心理健康心理学
- 患者报告的结果
背景情况:
- 自主管理 (SMN) 对慢性疾病至关重要,但其在炎症性肠病 (IBD) 中的作用需要进一步研究.
- 了解日本IBD患者的SMN对于优化护理和改善患者结果至关重要.
研究的目的:
- 评估日本炎症性肠病 (IBD) 患者当前的自我管理 (SMN) 状态.
- 研究日本IBD患者的自我管理 (SMN) 实践与生活质量 (QOL) 之间的关系.
主要方法:
- 一项基于网络的调查对被诊断患有性结肠炎 (UC) 或克罗恩病 (CD) 的日本成年患者进行了调查.
- 该调查评估了人口统计,生活方式行为 (饮食,压力管理),治疗坚持,支持系统和生活质量 (QOL).
- 使用统计分析,包括应急分析和后勤回归来确定与SMN相关的因素.
主要成果:
- 在372名受访者 (211名UC,161名CD) 中,大约60%的人积极实践自我管理 (SMN).
- 参与SMN的患者报告说,与非从业者相比,积极生活质量 (QOL) 的可能性高出4至24%.
- 在克罗恩病 (CD) 患者中,SMN比性结肠炎 (UC) 患者更为普遍,并且与IBD相关的住院治疗/手术和寻求咨询有关.
结论:
- 自主管理 (SMN) 与日本炎症性肠病 (IBD) 患者的改善生活质量 (QOL) 有显著的关联.
- 这些发现强调了促进自我管理策略的重要性,以改善患有IBD的个体的福祉.
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