基于网络的调查试点过程作为开发和测试过去避孕药使用和怀孕史的模型:囊性纤维化病例研究
Emily M Godfrey1, Malaika R Schwartz2, Karen D Hinckley Stukovsky3
1Departments of Family Medicine and Obstetrics and Gynecology, University of Washington, Seattle, WA, United States.
JMIR formative research
|July 18, 2023
概括
在复杂的慢性疾病中开发可靠的生殖健康调查至关重要. 这项试点研究改进了对囊性纤维化患者的调查,改善了未来关于避孕药使用和产科病史研究的数据准确性.
科学领域:
- 生殖健康研究 生殖健康研究
- 调查方法 调查方法
- 慢性疾病管理 慢性疾病管理
背景情况:
- 对于患有复杂慢性病的人来说,生殖健康越来越重要,他们活得更久.
- 自主管理的调查是收集历史避孕药使用和怀孕数据的可行方法.
- 在目标人群中进行试点调查可确保敏感主题的数据准确性和可靠性.
研究的目的:
- 开发一种精确可靠的测量仪器,用于避孕药的使用和产科史.
- 为患有囊性纤维化的人量身定制调查程序.
主要方法:
- 一个三级试点过程测试了50名参与者 (有/没有囊性纤维化,年龄在18-45岁) 的基于网络的调查问题.
- 认知预测 (一级) 评估了问题的理解和回忆提示.
- 评估了测试重复测试的可靠性和给药方法 (自我对面访谈者) (二级).
- 调查问卷的清晰度,完成时间,及时的必要性被评估 (三级).
主要成果:
- 受访者建议对基于网络的问题和提示进行改进,以加强对过去避孕药使用的回忆.
- 对于"一直使用"避孕方法的测试-重复测试可靠性高 (84%-100%) 对于自我和面试官管理的调查.
- 自治导致更多的缺失反应和更低的受访者对回忆准确性的信心.
- 大多数参与者更喜欢自我管理,以方便和速度.
结论:
- 一个三级试点过程有效地为复杂疾病群体量身定制了调查内容和格式.
- 结果为更大的研究设计提供了信息,包括数据归算的质量控制组件.
- 这种方法提高了特定患者群体的生殖健康数据收集的可靠性.
关键词:
避孕药是一种避孕产品.慢性疾病是一种慢性疾病.避孕药可以作为避孕药.作为一种避孕手段.囊性纤维化症是什么电子调查 电子调查 电子调查遗传病是一种遗传性疾病.产科病史 产科病史 产科病史怀孕 怀孕 怀孕 怀孕 怀孕调查问卷可靠性的可靠性生殖健康 生殖健康调查和问卷调查和问卷调查.更多相关视频
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