唐氏综合征成年人的医疗保健和行为变化1年进入COVID-19
Eric Rubenstein1, Nichole Kyprianou1, Prisha Sujin Kumar1
1Eric Rubenstein, Nichole Kyprianou, Prisha Sujin Kumar, and Anna-Mariya Kriova, Boston University School of Public Health.
概括
唐氏综合征 (DS) 的成年人经历了COVID-19的重大负面影响,包括失去活动,技能和增加的心理健康问题. 护理人员报告说,医疗保健和就业扎减少了,强调了有针对性的支持的必要性.
科学领域:
- 医学研究 医学研究
- 公共卫生 公共卫生
- 关于残疾人的研究.
背景情况:
- 唐氏综合征 (DS) 患者在COVID-19大流行期间面临不成比例的风险.
- 人们担心潜在的牺牲机会和活动,以减轻暴露风险.
研究的目的:
- 从护理人员的角度描述在COVID-19大流行期间患有DS的成人的经历.
- 评估对活动,就业,行为,技能,心理健康和医疗保健利用的影响.
主要方法:
- 一项在线调查对患有DS的成年人的护理人员进行了管理.
- 数据收集发生在2021年4月至2021年9月期间.
- 这项研究包括了438名患有DS的成年人样本.
主要成果:
- 护理人员报告说,对于患有DS的成年人来说,活动有显著的损失 (86.5%) 和就业困难.
- 消极的行为变化,技能丧失和心理健康状况的增加是普遍存在的.
- 报告了减少医疗保健使用 (20%) 和延迟常规护理 (25%).
结论:
- COVID-19大流行对患有唐氏综合征的成年人产生了深刻的负面影响.
- 针对性的支持对于解决持续的技能丧失和心理健康挑战至关重要.
- 对于这个脆弱的人群,需要持续监测和干预.
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