在欧洲,自闭症与同时发生的的护理途径
Maria A Mendez1, Roberto Canitano2, Bethany Oakley3,4
1Instituto de Investigación Sanitaria Gregorio Marañón, Hospital General Universitario Gregorio Marañón, Madrid, Spain.
概括
自闭症和经常同时发生,影响生活质量. 这项研究揭示了欧洲各地患有的自闭症儿童的护理途径和查方面的重大差距,需要政策协调.
科学领域:
- 神经发育障碍 神经发育障碍
- 神经学 神经学
- 公共卫生 公共卫生
背景情况:
- 自闭症谱系障碍 (ASD) 和经常同时发生,严重影响患者的福祉和家庭的生活质量.
- 自闭症患者同时出现的与生活质量下降和早逝率增加有关.
- 关于欧洲自闭症儿童同时患有的护理途径的研究有限.
研究的目的:
- 分析意大利,西班牙和英国患有的自闭症儿童的护理途径.
- 为了确定障碍及时查和治疗自闭症儿童的.
- 了解护理人员,自闭症社区和医疗保健专业人员的观点.
主要方法:
- 在意大利,西班牙和英国对0-18岁自闭症儿童的照顾者进行调查.
- 从护理人员,自闭症患者和专业人士的角度分析护理途径.
- 在自闭症儿童的查和治疗中识别系统性障碍.
主要成果:
- 在所有被研究的国家中,缺乏对所有自闭症儿童进行系统性查.
- 发现了同时发生的的不充分治疗和不适当使用抗药物的情况.
- 一个重大挑战是缺乏统一的,基于证据的指导方针来管理自闭症与同时出现的.
结论:
- 患有自闭症并发的护理途径呈现异质性和重大差距.
- 护理人员在确保自闭症儿童及时查,诊断和管理方面面临重大挑战.
- 欧洲范围内的政策协调对于改善自闭症患者及其家属的护理体验和生活质量至关重要.
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