对患者和公众参与和参与健康研究的考虑
Olalekan Lee Aiyegbusi1,2,3,4,5,6, Christel McMullan7,8,9,10,11,12,13,14, Sarah E Hughes7,8,9,10,11,12
1Institute of Applied Health Research, University of Birmingham, Birmingham, UK. o.l.aiyegbusi@bham.ac.uk.
Nature medicine
|July 20, 2023
概括
患者和公众参与和参与 (PPIE) 通过确保它满足患者需求来增强健康研究. 本次对长期COVID治疗方法 (TLC) 研究的综述提供了实用的检查清单,以优化PPIE对未来研究的影响.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 患者和公众参与和参与 (PPIE)
背景情况:
- 患者和公众参与和参与 (PPIE) 提供了对患者体验的宝贵见解,并确保研究满足患者需求.
- 虽然有指导方针,但PPIE策略在健康研究中的影响仍然被低估.
研究的目的:
- 评估PPIE在"非住院患者长期COVID治疗方法" (TLC) 研究中的影响.
- 确定PPIE实施中的良好实践领域和改进领域.
主要方法:
- 一个定性审查,包括小组讨论和采访与患者合作伙伴和参与TLC研究的研究人员.
- 为了收集进一步的见解,进行了一项调查.
主要成果:
- 在TLC研究中确定了PPIE的良好实践的具体领域.
- 突出了需要改进的领域,以便更有效的PPIE.
- 将研究结果综合成两份实用检查清单,以优化PPIE.
结论:
- PPIE对于以患者为中心的健康研究至关重要.
- 开发的检查清单可以指导研究团队最大限度地提高PPIE对患者和研究人员的好处.
- 进一步应用这些检查清单可以提高未来健康研究工作的影响力和有效性.
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