对多发性硬化症患者进行综合性群体心理干预的可行性和可接受性的评估:一项研究协议
Evangelia Fragkiadaki1, Nikki Cotterill2, Claire Rice3
1School of Social Sciences, College of Health, Science and Society, University of the West of England, Bristol, United Kingdom.
PloS one
|July 21, 2023
概括
一种新的小组干预,MyMS-Ally,显示出改善多发性硬化症 (MS) 患者的生活质量和情绪健康的希望. 本研究评估了其可行性和可接受性,用于管理多发性硬化症症状的个人.
科学领域:
- 神经科学是一个神经科学.
- 心理学 心理学 心理学
- 临床医学 临床医学
背景情况:
- 多发性硬化症 (MS) 呈现出复杂,多样化的症状,影响患者的生活质量,情绪状态和认知功能.
- 现有的通用心理干预措施可能无法完全解决MS的独特挑战和不可预测性.
- 以前的研究强调了需要量身定制的干预措施来管理MS的心理影响.
研究的目的:
- 探索一种新的整合性群体心理干预,MyMS-Ally,对于MS患者的可行性和可接受性.
- 为了获得关于MyMS-Ally对生活质量,情绪调节,抑郁和焦虑的影响的初步数据.
- 为进一步开发和大规模评估以患者为中心的MS干预提供信息.
主要方法:
- 融合混合方法设计涉及8周的小组干预 (MyMS-Ally) 对于患有MS的个体.
- 通过个人半结构面试 (解释性现象学分析) 进行质量数据收集,干预前后,并在3个月后进行随访.
- 在多个时间点使用经过验证的生命质量,情绪调节,抑郁和焦虑的量化数据收集.
主要成果:
- 该研究将评估MyMS-Ally干预和研究协议 (可行性) 的相关性,可持续性和遵守.
- 可接受性将根据参与者的情绪和认知反应,满意度和感知到的有效性进行评估.
- 将收集有关干预对关键心理结果的影响的初步数据.
结论:
- MyMS-Ally干预旨在以患者为中心的方法,解决MS患者的特定需求和偏好.
- 这些发现将为未来的大规模临床试验中MyMS-Ally的改进提供指导.
- 这项研究旨在加强与多发性硬化症相关的心理痛苦的管理.
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