在患有脑瘤期间对社会支持和关系的感知:一项定性研究
Anna Zanotto1,2, Karen Goodall3, Marion Ellison1
1Queen Margaret University, Edinburgh, UK.
Psychology & health
|July 22, 2023
概括
大脑瘤患者将社会支持体验为共同的旅程,而不是个人任务. 应对涉及家人和朋友,但寻求帮助可能很困难,以避免负担亲人.
科学领域:
- 神经瘤学神经瘤学
- 心理社会瘤学 心理社会瘤学
- 定性研究是指质量研究.
背景情况:
- 大脑瘤显著破坏患者的社会角色和网络.
- 社会支持对于慢性疾病调整至关重要,但它在应对脑瘤方面的作用尚未得到充分研究.
研究的目的:
- 探索对被诊断患有脑瘤的个人提供社会支持的实践经验.
- 为了调查脑瘤诊断后社会关系中的动态.
主要方法:
- 使用了解释性现象学分析 (IPA).
- 采访了12名患有原发性脑瘤 (83%低度) 的参与者 (83%女性,年龄29-54岁).
- 半结构面试使用IPA进行,转录和分析.
主要成果:
- 五个主要主题出现了:在家庭中共同应对,关心他人,给予和接受支持,需要分享经验,以及谈判独立.
- 大脑瘤影响了整个亲密关系网络,表明应对是集体努力.
- 发现应对深深植根于社会背景.
结论:
- 寻求支持带来了代价,导致一些患者避免寻求帮助,以免给护理人员造成负担.
- 与其他患有类似诊断的人交谈培养了认可和归属感.
- 有效应对脑瘤是一个社会综合的过程,而不仅仅是个人的努力.
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