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开发多发性硬化症性综合概念模型的开发

Michelle H Cameron¹, Francois Bethoux², Edelle Field-Fote^3,4

¹Department of Neurology, OR Health & Science University, Portland, OR, USA.

Disability and rehabilitation

|July 22, 2023

概括

一个新的概念模型整合了专家知识,文献和患者经验,以了解多发性硬化症 (MS) 的性. 该模型突出了MS性的复杂多维性质,以改善护理.

科学领域:

神经学神经学
康复医学康复医学康复医学

背景情况:

性是多发性硬化症 (MS) 的普遍和致残症状.
现有的MS性的理解往往忽视了患者的经验和新兴的临床见解.

研究的目的:

开发一个全面的概念模型的性在MS.
整合专家意见,最近的文献和临床医生和患有MS的人的现实经验.

主要方法:

进行了有针对性的文献综述 (2014-2019).
从多学科的性专家,临床医生和患有MS性的人士收集了输入.
一种基于共识的方法指导了模型开发.

主要成果:

综合模型包括调节器,触发器,修饰器,治疗,客观和主观表现,影响 (身体,功能,社会,情感/心理) 和长期后果.
参与者认为,紧张和疼痛是性的关键描述因素.
新的触发因素,情绪/心理影响和长期后果是由MS性患者报告的.

结论:

开发的概念模型说明了MS性的复杂多维性质.
该模型提供了一个框架,以加强临床医生与患者的沟通,指导研究,并改善对MS性的患者护理.

关键词:

多发性硬化症是多发性硬化症.概念模型是一个概念模型.面试面试面试面试肌肉性肌肉性定性研究是指质量研究.

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