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构建系统性硬化症相关雷诺现象 (ASRAP) 评估问卷的有效性和可靠性
John D Pauling1,2,3, Lan Yu4, Tracy M Frech5
1Department of Rheumatology, North Bristol NHS Trust, Bristol, UK.
Rheumatology (Oxford, England)
|July 23, 2023
概括
系统性硬化症相关雷诺现象评估 (ASRAP) 和ASRAP短形式 (ASRAP-SF) 问卷是经过验证和可靠的患者报告的结果工具. 这些仪器有效地评估雷诺现象在全身性硬化症中的严重程度和影响.
科学领域:
- 类风湿病学 类风湿病学
- 临床评估 临床评估
- 患者报告的结果
背景情况:
- 系统性硬化症相关的雷诺现象 (SSc-RP) 显著影响患者的生活质量.
- 需要验证的仪器来准确测量SSc-RP的严重程度及其影响.
研究的目的:
- 评估SSc-RP.新型患者报告结果 (PRO) 仪器的构造有效性和可靠性.
- 为了验证系统性硬化症相关雷诺现象 (ASRAP) 和ASRAP短形式 (ASRAP-SF) 问卷的评估.
主要方法:
- 一项国际多中心验证研究,涉及420名SSc受试者.
- 评估了与人口统计,临床表型和传统仪器的相关性.
- 在一周后评估重复性,并建立了含义值.
主要成果:
- ASRAP和ASRAP-SF与RP视觉模拟秤 (VAS) 和用于残疾,疼痛和全球健康的仪器显示出良好的相关性.
- 可重复性非常好 (类内系数为0.891和0.848).
- 在患有数字的患者,有数字的病史和症的患者中观察到更高的得分.
结论:
- ASRAP和ASRAP-SF问卷是有效和可靠的PRO工具.
- 这些工具可以有效地评估SSc-RP的严重程度和影响.
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Inquire about symptoms...
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Ask the patient about their primary concern and thoroughly explore all reported symptoms.
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Inquire about symptoms...
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Head and Neck
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