个性化综合护理促进老年人的生活质量:多中心随机对照试验的协议
Elda Judica1, Peppino Tropea1, Raquel Bouça-Machado2
1Department of Neurorehabilitation Sciences, Casa di Cura Igea, Milan, Italy.
JMIR research protocols
|July 24, 2023
概括
在一项大型欧洲研究中测试的个人化综合护理促进老年人生活质量 (PC4L) 平台旨在改善神经退行性疾病患者的生活质量. 结果将评估其在不同护理环境中的影响,可用性和可行性.
科学领域:
- 老年病学和康复疗法
- 数字健康和健康信息学
- 神经退行性疾病管理管理
背景情况:
- 阿尔茨海默病 (AD) 和帕金森病 (PD) 是影响全球数百万人的主要神经退行性疾病.
- PC4L项目开发了一个集成,可扩展和交互式的护理生态系统,可适应各种慢性疾病和护理环境.
- 这个生态系统旨在提高神经退行性疾病的老年人的生活质量.
研究的目的:
- 代测试PC4L集成平台及其模块.
- 评估PC4L平台对患者生活质量的影响.
- 评估PC4L平台在各种护理场景 (家庭,神经康复,托儿所) 中的可用性和可行性,采用大样本.
主要方法:
- 一项前性多中心临床研究,涉及558名患有PD,帕金森症,AD和其他痴呆症 (ODs) 的患者,遍布欧洲5个国家的6个试点中心.
- 患者被随机分配 (1:1) 到使用PC4L系统 (活动监测和应用程序的腕带) 的干预组或对照组.
- 在基线和研究结束时进行了临床评估,包括评估生活质量的EQ-5D-3L尺度.
主要成果:
- 该研究 (NCT05538455) 的招募工作已经完成,在2022年9月至2023年2月期间,已招募了558名患者.
- 这项由欧盟委员会"2020地平线"资助的研究获得了所有参与中心的伦理批准.
- 预期的结果将澄清PC4L对生活质量,患者赋权,医疗资源利用,系统可用性和决策支持的影响.
结论:
- PC4L项目验证了针对神经退行性疾病的基于技术的综合护理平台,提出了改进的协调护理模式.
- 未来的发展可能包括护理人员和社会卫生专业人员,以加强沟通并确保欧洲各地的安全数据访问.
- PC4L解决方案提供了一种可扩展和互动的方法来管理慢性疾病并改善患者的治疗结果.
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