父母的感知:参与模式和对自闭症谱系障碍儿童和青少年的改变愿望-瑞士的一项基于人口的描述性研究
Beate Krieger1,2, Barbara Piškur3,4, Anna J H M Beurskens2
1School of Health Professions, ZHAW Zurich University of Applied Sciences, Winterthur, Switzerland.
Child: care, health and development
|July 24, 2023
概括
患有自闭症谱系障碍 (ASD) 的年轻人最多在家里参与,在学校参与较少,在社区很少参与. 父母希望增加他们的孩子和青少年与ASD的参与频率和参与度.
科学领域:
- 儿科健康 儿科健康
- 发展心理学 发展心理学
- 关于残疾人的研究.
背景情况:
- 患有自闭症谱系障碍 (ASD) 的年轻人的参与水平通常很低,年龄特定和上下文数据有限.
- 了解不同年龄组和环境中的参与模式对于有针对性的干预至关重要.
研究的目的:
- 从父母的角度来描述在瑞士患有自闭症的儿童 (5-11岁) 和青少年 (12-17岁) 的参与模式.
- 确定家长对改变ASD青少年参与的愿望,在家庭,学校和社区环境中进行参与.
主要方法:
- 一项采用德国版本的参与和环境措施 - - 儿童和青年 - - 的横截面研究.
- 从60名患有自闭症儿童和55名青少年的家长那里收集了关于参与45项活动的数据.
- 分析的重点是比较跨年龄组 (儿童与青少年) 和环境 (家庭,学校,社区) 的参与.
主要成果:
- 参与率在家中最高,其次是学校,社区参与率在两个年龄组中都是最小的.
- 儿童的家庭参与率高于青少年;学校参与率高于参与频率,在两组中.
- 社区参与频率较低,但在儿童中更高;参与率在两组中同样低. 一半的家长希望改变,特别是增加频率和参与.
结论:
- 调查结果突出了基于年龄和ASD年轻人的环境参与模式的显著差异.
- 结果告知服务提供商调整方案,以更好地满足家长的需求和增强参与.
- 在家庭,学校和社区环境中增加参与是ASD青少年父母的关键愿望.
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