在新生儿查和父母痛苦中传达积极结果
Elisa Lastrucci1, Marta Daniotti2, Elena Procopio2
1Department of Experimental and Clinical Biomedical Sciences, University of Florence, 50019 Florence, Italy.
International journal of neonatal screening
|July 25, 2023
概括
新生儿的父母与积极的扩展新生儿查 (ENS) 结果可能会经历心理困扰. 这项研究确定了父母接受阳性ENS结果的痛苦指标,影响了家庭福祉.
科学领域:
- 医学遗传学 医学遗传学
- 儿科 儿科 儿科
- 心理学 心理学 心理学
背景情况:
- 扩展新生儿查 (ENS) 识别新生儿的遗传疾病.
- 阳性ENS结果可能会导致父母的心理痛苦,影响家庭动态和孩子的福祉.
- 有限的研究量化了父母在阳性ENS结果后的痛苦.
研究的目的:
- 在新生儿的父母中调查和客观化心理痛苦指标,新生儿的父母有阳性ENS结果.
- 评估传播积极的ENS结果对父母心理健康的直接影响.
- 为家庭导航阳性新生儿查结果的支持策略提供信息.
主要方法:
- 对家长进行的贝克抑郁 inventory-II,状态特征焦虑 inventory-Y和SF-36健康调查.
- 招募了87名新生儿的父母,这些新生儿的ENS结果呈阳性.
- 分析了调查问卷数据,以确定救援指标.
主要成果:
- 在87名家长中,有32名 (36.8%) 报告了可能与阳性ENS结果沟通相关的不适.
- 该研究确定了父母在ENS通知后的困境的具体指标.
- 调查结果强调了新生儿查阳性婴儿的父母的心理负担.
结论:
- 传达积极的扩展新生儿查结果可以引起父母的重大痛苦.
- 早期识别父母的痛苦对于有效的家庭支持和儿童状况的管理至关重要.
- 进一步的研究应该探索长期的心理影响和针对受影响家庭的有针对性的干预措施.
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