孕育唐氏综合征儿童的母亲的护理负担
Tulashi Adhikari Mishra1, Kabita Pandey2, Bishnu Bhujel3
1Maharajgunj Nursing Campus, Institute of Medicine, Tribhuvan University, Kathmandu Nepal.
Journal of Nepal Health Research Council
|July 25, 2023
概括
照顾唐氏综合征儿童的母亲经历了相当大的照顾负担,包括情绪和财务压力. 这种负担与母亲分娩时的年龄有关,这凸显了支持计划的必要性.
科学领域:
- 遗传学和人类发展
- 护理人员支持和心理健康
背景情况:
- 唐氏综合征是一种常见的染色体疾病,导致智力障碍.
- 照顾残疾儿童给父母带来了独特的日常挑战.
- 这项研究调查了唐氏综合征儿童的母亲所经历的护理负担.
研究的目的:
- 评估抚养唐氏综合征儿童的母亲的护理负担水平.
- 确定这些护理人员面临的具体挑战.
- 探索与照顾者负担相关的因素.
主要方法:
- 一项涉及尼泊尔96名患有唐氏综合征儿童的母亲的描述性横截面研究.
- 通过采访采集的数据使用修改的护理人员菌株指数工具.
- 分析采用描述性和推断性统计学.
主要成果:
- 77.1%的母亲报告了高水平的护理负担.
- 大多数母亲 (89.6%) 感到被孩子的病情所压倒.
- 显著的压力包括财务 (55.2%),工作调整 (57.3%),情感调整 (60.4%) 和身体压力 (53.1%).
- 护理负担与母亲分娩时的年龄有显著的关联 (p=0.008).
结论:
- 患有唐氏综合征的孩子的母亲经历了相当大的照顾负担.
- 护理人员的负担与分娩时的母亲年龄有很大关系.
- 建议包括为护理人员实施支持计划,以及为预防唐氏综合征开展社区宣传活动.
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