成年患者使用患者门户的经验,重点关注感知到的好处和困难,以及对隐私和安全的看法:定性描述性研究
1Translational Biobehavioral and Health Disparities Branch, National Institutes of Health Clinical Center, Bethesda, MD, United States.
JMIR human factors
|July 25, 2023
概括
患者门户网站提高了患者的参与度,但延迟响应和信息获取困难等可用性问题仍然存在. 解决这些问题是改善以用户为中心的患者门户网站设计和安全性的关键.
科学领域:
- 医疗信息学 医疗信息学
- 人与计算机的交互
- 患者参与 患者参与
背景情况:
- 患者门户越来越多地在全国范围内实施,以改善患者参与护理管理.
- 持续评估和用户反对于开发以用户为中心的患者门户至关重要.
研究的目的:
- 为了调查成年患者与患者门户的实践经验.
- 识别患者门户的隐私和安全方面的感知好处,困难和担忧.
主要方法:
- 使用来自20个护理机构734名患者的横截面数字调查数据进行的定性描述性研究.
- 对1589条定性评论进行内容分析,以确定与患者门户网站使用相关的主题.
主要成果:
- 大多数参与者发现患者门户对沟通和健康监测有好处.
- 关键的困难包括延迟的eMessage响应和发现信息的挑战.
- 对门户网站的信任与安全登录和提供商的信任有关;关注的重点是数据泄露.
结论:
- 患者门户提供好处,但需要提高可用性和及时沟通.
- 调查结果为医疗机构和开发人员提供信息,以创建更多以用户为中心,安全和私人患者门户.
- 未来的研究应该探索其他患者门户程序和非用户群体.
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