在专门的息性家庭护理中支持ALS患者的家人时,护士面临的挑战:一项定性研究
Alexandra Beyermann1, Margareta Asp1, Tove Godskesen2,3
1Division of Caring Science, School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna, Sweden.
概括
在专门的息性家庭护理 (SPHC) 中,注册护士 (RN) 为患有肌缩侧面硬化症 (ALS) 的患者的家属提供了至关重要的支持. 他们促进日常生活,提供情感支持,解决患者及其家人的复杂需求.
科学领域:
- 护理 护理 护理
- 抚慰性护理是一种缓解性护理.
- 肌缩侧面硬化症 (ALS) 研究研究
背景情况:
- 肌缩侧面硬化症 (ALS) 患者的家庭成员面临着巨大的需求,包括疲劳,焦虑和内.
- 对于应对ALS的家庭来说,有必要建立支持系统.
- 专门的息家庭护理 (SPHC) 在支持这些家庭方面发挥着至关重要的作用.
研究的目的:
- 探索注册护士 (RN) 在SPHC环境中为ALS患者的家属提供支持的经验.
- 了解RN为ALS患者家庭提供的支持的多方面性质.
- 确定RN在SPHC中所采用的关键挑战和成功策略.
主要方法:
- 采用了定性探索性设计.
- 采访了来自瑞典五个SPHC的11名RN.
- 数据使用定性内容分析来分析.
主要成果:
- 执业护士专注于通过建立信任,平衡患者和家庭需求,并教育家庭关于终身护理来支持家庭的日常生活.
- 在不愉快的情况下,RN通过承认困难的感受和提供安慰来提供情感支持,甚至在不愉快的情况下.
- 执业护士强调接受同事的确认和支持的重要性,以有效提供护理.
结论:
- 在SPHC的RN在支持ALS患者的家庭中发挥着重要作用,通过促进日常生活和提供必要的情感支持来支持ALS患者的家庭.
- 执业护士提供的支持是根据ALS患者及其家人的具体需求量身定制的.
- 有效的SPHC涉及一种整体方法,它解决了整个家庭单位的实际和情感福祉.
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