晚期癌症患者及其亲属的未满足护理需求:多中心观察性研究
Helen P A Driessen1, Jan J V Busschbach2, Carin C D van der Rijt3
1Department of Psychiatry, Section Medical Psychology and Psychotherapy, Erasmus Medical Center, Rotterdam, The Netherlands h.driessen@erasmusmc.nl.
BMJ supportive & palliative care
|July 25, 2023
概括
患有晚期癌症的患者和亲属经历了重大的心理痛苦和未满足的需求,特别是关于未来的担忧和对痛苦的恐惧. 信息和支持中心可以帮助解决这些关键的护理差距.
科学领域:
- 抚慰性护理是一种缓解性护理.
- 在瘤学瘤学.
- 心理社会瘤学
背景情况:
- 晚期癌症患者及其亲属的护理需求在整个疾病轨迹中不断发展.
- 了解这些不断变化的需求对于提供有效支持至关重要.
- 信息和支持中心在息治疗中发挥着至关重要的作用.
研究的目的:
- 调查晚期癌症患者及其亲属的护理相关问题和需求.
- 从信息和支持中心的角度评估这些需求.
- 为了确定在先进的癌症护理中常见的未满足需求.
主要方法:
- 采用eQuiPe观察队列研究数据的横截面研究.
- 包括来自荷兰40家医院的成年患有转移瘤的患者及其亲属.
- 评估护理问题和需求,使用"息护理中的问题和需求"问卷的简体版本.
主要成果:
- 1103名患者和831名亲属参加了这次活动.
- 心理问题是两个群体最突出的问题和未满足需求领域.
- 主要未满足的需求包括"担心我亲人的未来" (患者) 和"害怕患者的身体痛苦" (亲属).
结论:
- 晚期癌症护理的未满足需求主要与多个领域的恐惧和担忧有关.
- 信息和支持中心的位置很好,可以解决这些广泛的未满足需求.
- 这些中心的有针对性的支持可能会减轻患者及其家人的负担.
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