影响的讲故事:为研究中的患者合作伙伴创建一个讲故事计划
Leah E Getchell1, Marian Reich2, Selina Allu2
1Can-SOLVE CKD Network, Vancouver, Canada. lgetchel@uwo.ca.
Research involvement and engagement
|July 25, 2023
概括
患者伙伴分享他们的故事可以推动医疗保健变革. 新的虚拟和异步程序为有影响力的讲故事提供了结构化的支持,弥合了慢性疾病研究中的患者和专业人员之间的差距.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 患者和公众参与.
- 在医疗保健领域的沟通
背景情况:
- 患者伙伴的讲故事可以培养同情心,推动医疗保健系统的改进.
- 患者合作伙伴经常在没有足够的支持的情况下分享经验,这可能会扩大与医疗保健专业人员的差距.
- 加拿大寻求解决方案和创新来克服慢性病 (Can-SOLVE CKD) 网络解决了这一差距.
研究的目的:
- 描述开发的新计划,以支持患者的合作伙伴在有影响力的讲故事.
- 为了促进在医疗保健和研究环境中有效分享患者的故事.
- 为跨学科培训患者讲故事者提供一个可扩展的模型.
主要方法:
- 将面对面的讲故事研讨会改编为为期6周的虚拟课程 ("讲故事以产生影响").
- 由训练有素的故事教练 (项目校友和工作人员) 共同促进同步在线研讨会.
- 开发一个额外的异步在线程序,以实现更广泛的可访问性.
主要成果:
- 虚拟程序指导患者合作伙伴制作有影响力的故事,并呼吁采取行动.
- 该计划得到了积极的欢迎,并引起了其他卫生组织的兴趣.
- 创建了两个新的,结构化的讲故事程序 (虚拟和异步).
结论:
- 结构化的支持对于患者合作伙伴至关重要,通过讲故事来有效调解变化.
- 这些计划提供了一个可转移的模型,以加强患者和公众参与研究.
- 需要更多的资源来确保计划的可持续性,并通过校友培训扩大规模.
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