为与患者社区共同创建癌症护理远程医疗的新框架
Bonnie Addario1, Violeta Astratinei2, Louise Binder3
1GO2 Foundation for Lung Cancer, San Carlos, CA, USA.
The patient
|July 26, 2023
概括
患者倡导者对于在癌症护理中开发有效的远程医疗至关重要. 他们的参与确保了患者需求是远程医疗服务的核心,改善了所有癌症患者的访问和体验.
科学领域:
- 在瘤学瘤学.
- 医疗保健服务研究 医疗服务研究
- 数字健康数字健康
背景情况:
- 2019年新冠肺炎疫情加速了癌症护理中的远程医疗采用,揭示了它的好处和局限性.
- 远程医疗在瘤学中并不是所有患者都能普遍获得的,合适的,或者是所有患者都喜欢的.
- 目前有机会重新评估和优化癌症护理中的远程医疗服务.
研究的目的:
- 为在癌症护理中开发以患者为中心的远程医疗提出框架.
- 将患者的需求和偏好纳入远程医疗服务的设计和提供.
- 定义患者倡导者的角色,作为远程医疗发展中的平等合作伙伴.
主要方法:
- 框架开发涉及关键利益相关者:患者,倡导者,提供者,专员,经理和政策制定者.
- 强调患者倡导者对患者观点和医疗保健专业知识的独特理解.
- 在政策制定,指南制定和患者导航中概述倡导者的角色.
主要成果:
- 一个协作框架,使患者倡导者能够与其他利益相关者合作.
- 确定必要的资源,教育和培训,以有效地发展远程医疗系统.
- 展示倡导者如何塑造远程医疗以以患者为中心.
结论:
- 患者倡导者对于优化癌症护理中以患者为中心的远程医疗至关重要.
- 通过倡导者整合患者的观点,提高了远程医疗服务的适当性和有效性.
- 协作方法是成功实施远程医疗在瘤学的关键.
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