确定父母使用个人联系和社交网络在研究项目中招聘的优缺点:一项定性研究
Laesa Kim1, Carrie Costello2, Michael A Golding2,3
1Family Liaison, BC Children's Hospital Research Institute, 938 W 28th Ave, Vancouver, BC, V5Z 4H4, Canada.
Research involvement and engagement
|July 26, 2023
概括
参与研究的父母的动机是个人联系和改变的愿望. 真正的合作伙伴关系增强了招聘,从而为改善以患者为导向的研究和团队合作提供了有价值的见解.
科学领域:
- 以患者为导向的研究.
- 健康研究方法的方法论.
- 参与社区研究的研究.
背景情况:
- 越来越多的家长参与慢性疾病儿童的研究是常见的.
- 父母伙伴关系提高了研究的相关性和家庭对齐.
- 父母合作伙伴经常通过个人网络帮助招聘研究人员.
研究的目的:
- 探索家长在以患者为导向的研究中的合作伙伴的经验.
- 了解家长与研究人员合作对研究招聘的影响.
- 确定影响家长参与研究的因素.
主要方法:
- 在线调查人口统计数据 (描述性分析).
- 专注小组和面试用于定性数据 (主题分析).
- 父母共同领导参与所有研究阶段.
主要成果:
- 15名经验丰富的家长参与 (14名女性,大多数是白人/欧洲血统).
- 确定的主题:动机 (个人联系,社区影响,变化),真实的伙伴关系和学习决策.
- 真正的伙伴关系增加了分享研究信息的意愿,有助于招聘.
结论:
- 父母的经验为招聘策略和团队运作提供了洞察力.
- 父母合作伙伴愿意支持招聘,并重视协作团队.
- 为参与研究伙伴关系的研究人员和家长提供了建议.
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