跨学科的管理的人与脊椎裂在整个生命周期的脊椎裂
Vera H Koch1, MarcosTomasin Lopes2, Erika Furusawa2
1Pediatric Nephrology Unit, Department of Pediatrics, University of São Paulo Medical School, Children's Hospital, Hospital das Clinicas, Sau Paulo, Brazil. vera.koch23@gmail.com.
Pediatric nephrology (Berlin, Germany)
|July 27, 2023
概括
神经管缺陷 (NTDs),像脊柱裂 (SB),是多因素的出生缺陷. 终身多学科护理对于管理SB并发症和改善生活质量至关重要.
科学领域:
- 神经学 神经学
- 儿科 儿科 儿科
- 公共卫生 公共卫生
背景情况:
- 神经管缺陷 (NTDs) 影响全球1000分之一的出生,脊柱裂 (SB) 是一个主要的例子.
- 脑神经系统的发展涉及复杂的遗传和环境因素,影响神经功能和生活质量.
研究的目的:
- 审查NTDs的多因素性质,专注于脊柱裂.
- 突出早期诊断,多学科护理和SB患者终身管理策略的重要性.
主要方法:
- 关于神经管缺陷和脊柱裂的研究的文献综述.
- 对影响神经发育结果,功能能力和SB患者生活质量的因素的分析.
主要成果:
- 产前修复骨髓髓髓细胞可以改善运动功能并减少水头.
- 患有SB的个人经常经历认知困难,失禁,随着年龄的增长,行走能力下降.
- 肠道和泌尿失禁显著影响与健康有关的生活质量在成人SB.
结论:
- 早期诊断,主动管理和终身多学科跟踪对SB患者至关重要.
- 过渡到成人护理,解决性问题和护理人员支持是全面的SB管理的关键组成部分.
- 幸存率仍然很低,在实施最佳实践方面存在重大挑战,特别是在资源较少的环境中.
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