"我感觉自己更像是世界的一部分":参与行动研究,以开发诊断后痴呆症支持
Julie Watson1, Jane Wilcockson2, Agnes Houston1
1University of Edinburgh, Edinburgh, UK.
Dementia (London, England)
|July 28, 2023
概括
患有痴呆症的人往往错过了支持. 一个参与式的在线计划"继续生活" (GO) 被开发出来,为那些处于边缘的群体提供了可访问的,个性化的学习和社会参与机会.
科学领域:
- 老年学是一门学科.
- 公共卫生 公共卫生
- 社会科学 社会科学 社会科学
背景情况:
- 许多患有痴呆症的人仍然没有得到现有的支持系统的服务.
- 在全球范围内,COVID-19大流行严重扰乱了面对面的痴呆症护理服务.
- 政策进步尚未完全解决边缘化痴呆症人口的需求.
研究的目的:
- 开发,实施和评估一个支持计划,为患有痴呆症的人在护理边缘.
- 由于COVID-19大流行,将面对面的节目适应在线格式.
- 专注于参与式方法,开发和交付"继续生活" (GO) 计划.
主要方法:
- 一个三个阶段的参与行动研究项目,涉及痴呆症患者,护理伙伴和从业人员.
- 开发和评估一个为期七周的在线个人发展计划 (GO).
- 专注于共同设计原则,安全空间和参与者主导的目标.
主要成果:
- 该GO计划成功地被改编为在线格式.
- 计划的关键原则包括创造安全,尊重的空间,并重视参与者的知识.
- 诊断后支持的"三明治"模式被认为是至关重要的,整合了访问,学习和社会参与.
结论:
- 参与式联合设计在制定相关的痴呆症支持计划方面是有效的.
- 在线交付可以克服边缘化痴呆症人口的障碍.
- 综合后诊断支持,包括访问,学习和社会联系,对于改善福祉至关重要.
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