在低级非霍奇金淋巴瘤幸存者中,自我管理的经验和偏好:一种定性访谈研究
Nickola D Pallin1, Mairead O'Connor2, Alannah Gannon3
1School of Public Health, University College Cork, Cork, Ireland.
概括
低级非霍奇金淋巴瘤幸存者需要终身自我管理支持. 关键组成部分包括定期监测和社交网络参与,以改善生活质量.
科学领域:
- 在瘤学瘤学.
- 患者自我管理
- 生活质量研究 研究 生命质量研究
背景情况:
- 低级非霍奇金淋巴瘤 (LNH) 通常遵循慢性疾病的发展轨迹.
- 终身自我管理对于幸存者来说至关重要,以优化生活质量.
- 了解幸存者和护理人员对自我管理的看法至关重要.
研究的目的:
- 探索LNH幸存者和非正式照顾者的自我管理观点.
- 在LNH幸存者中确定自我管理支持的偏好.
- 为长期癌症幸存者制定量身定制的支持计划提供信息.
主要方法:
- 进行了深入的,半结构化的电话采访.
- 包括八名LNH幸存者和两个家庭护理人员.
- 利用诱导和演的主题分析来确定关键主题.
主要成果:
- 慢性NH的性质影响了幸存者的自我管理观念和策略.
- 社交网络在实现自我管理方面发挥着至关重要的作用.
- 幸存者需要治疗后的支持和监测,更喜欢定期审查,饮食建议和心理社会支持.
结论:
- 由于疾病的慢性性质,对LNH幸存者来说,自我管理支持非常重要.
- 有效的支持计划应包括定期审查和监测,并促进社交网络的参与.
- 解决心理社会后果是最佳自我管理支持的关键组成部分.
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