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基于偏好测量非正式照顾者的生活质量的可行性和有效性:一项大声思考的研究

Carol McLoughlin¹, Ilias Goranitis², Hareth Al-Janabi³

¹Health Information and Quality Authority, Dublin, Ireland.

Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research

|July 29, 2023

概括

非正式照顾者发现生活质量 (QoL) 措施是可行的和有效的,尽管存在一些挑战. 基于偏好的QoL工具通常受到护理人员的好评,优先考虑与护理相关的具体措施.

科学领域:

医疗保健服务研究医疗服务研究
患者报告的结果
老年学是指老年学的学科.

背景情况:

非正式照顾者提供必要的支持,影响他们的生活质量 (QoL).
基于偏好的QOL措施越来越多地被使用,但它们对非正式护理人员的适用性需要评估.
了解这些措施的有效性和可行性对于准确评估至关重要.

研究的目的:

在英国非正式照顾者中对五项基于偏好的QOL措施的可行性,内容有效性和可接受性进行定性评估.
确定与使用该人口中的QoL测量相关的挑战和偏好.

主要方法:

进行了24次"大声思考"采访,与成年人的非正式照顾者进行了采访.
接下来是采访与半结构化讨论,以探索有效性和可行性.
采访数据的转录,编码和主题分析.

主要成果:

当护理人员完成QOL测量时,发现的错误很少 (3%-7%).
大多数护理人员发现这些措施是明确的,简洁的和相关的,尽管存在一些与背景和响应选择有关的挑战.
非正式照顾者普遍更喜欢与照顾相关的QOL措施.

结论:

基于偏好的QOL措施证明了非正式护理人员的有希望的有效性和可行性.
发现的轻微挑战应在措施管理过程中考虑.
这些发现支持使用适当的QOL措施来了解非正式护理人员的经验.

关键词:

认知面试是一个认知面试.内容有效性内容有效性非正式的护理是非正式的.心理健康心理健康结果测量结果的测量.定性研究是指质量研究.

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