面对复杂,危及生命的儿童的共同决策中的父母之间的挑战和应对:定性内容分析
Heeyeon Son1, Tolu O Oyesanya2, Debra Brandon2
1College of Nursing, University of Tennessee, Knoxville, TN, USA.
Journal of pediatric nursing
|July 29, 2023
概括
面对复杂的儿童疾病的父母在决策方面面临着挑战. 一个支持性的伴侣有助于应对和决策,强调了婚姻关系在儿科护理中的关键作用.
科学领域:
- 儿科重症监护 儿科重症监护
- 家庭心理学 家庭心理学
- 医疗决策的制定能力
背景情况:
- 在为孩子做关键决策时,对父母的挑战和应对策略的理解有限.
- 专注于面临危及生命的儿科疾病的父母之间的人际关系动态.
研究的目的:
- 探索父母面临的挑战和应对机制,共享决策的孩子,复杂,危及生命的疾病.
- 分析父母的人际关系对他们的决策过程的影响.
主要方法:
- 对38次与父母夫妇的采访进行二次分析.
- 涉及20名被诊断患有先天性心脏病或接受血造干细胞移植 (HSCT) 的婴儿.
- 传统的内容分析用于数据解释.
主要成果:
- 确定了父母在共同决策过程中遇到的关键挑战.
- 揭示了"父母在共同做决定时所面临的挑战"和"父母共同应对共同做决定的挑战"的主题.
结论:
- 决策的挑战往往与孩子的严重疾病和相关的不确定性有关.
- 支持性的配偶关系对于有效的应对和决策至关重要.
- 建议包括评估婚姻动态,确保清晰的沟通,并教育医疗保健提供者支持共享决策.
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