准则小组成员的定性研究:创新的调查提供了有关患者价值观和偏好的宝贵见解
Linan Zeng1, Shelly-Anne Li2, Mengting Yang3
1Evidence-based Pharmacy Centre/Pharmacy Department, West China Second University Hospital, Sichuan University, Chengdu, China; Key Laboratory of Birth Defects and Related Diseases of Women and Children, Sichuan University, Ministry of Education, Chengdu, China; Department of Health Research Methods, Evidence and Impact, McMaster University, Hamilton, Ontario, Canada.
Journal of clinical epidemiology
|July 30, 2023
概括
专家小组调查有助于指导方针小组将患者的价值观和偏好纳入建议. 这些调查有助于提高决策,特别是当有关患者偏好的直接证据有限时.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 临床指南开发 临床指南开发
背景情况:
- 纳入患者的价值观和偏好对于基于证据的临床指南至关重要.
- 准则小组经常面临系统地提取和整合患者观点的挑战.
研究的目的:
- 调查指南小组成员对小组调查的理解和使用情况.
- 评估这些调查对制定建议的影响.
主要方法:
- 涉及四个指南小组 (共99名小组成员) 的定性研究.
- 数据收集包括小组会议记录和对25名小组成员的采访.
- 诱导性主题分析用于数据解释.
主要成果:
- 专家小组成员发现,调查有助于将患者的价值观和偏好纳入利益与危害的权衡中.
- 调查结果反映了患者的变化和不确定性,有助于确定推的强度.
- 这些调查增强了小组建议背后的理由.
结论:
- 专家小组调查有效地支持在制定指南时明确考虑患者的价值观和偏好.
- 建议广泛采用小组调查,特别是当有关患者偏好的证据稀缺时.
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