澳大利亚黑色素瘤患者和护理人员的支持性护理需求:来自定量横截面调查的结果
Jake R Thompson1,2, Hong Fu3, Robyn P M Saw4,5,6
1Faculty of Medicine and Health, The University of Sydney, Sydney, NSW, Australia. jake.thompson@sydney.edu.au.
概括
澳大利亚黑色素瘤患者和护理人员经历了大量未满足的支持性护理需求,特别是关于心理和情感健康的需求. 改善获得心理服务的机会对于改善患者和护理人员的结果至关重要.
科学领域:
- 在瘤学瘤学.
- 心理医学 心理医学
- 医疗保健服务研究 医疗服务研究
背景情况:
- 黑色素瘤患者及其护理人员经常面临未得到满足的支持性护理需求.
- 了解这些需求对于开发有效的干预措施和改善患者结果至关重要.
研究的目的:
- 调查澳大利亚黑色素瘤患者及其护理人员的支持性护理需求.
- 确定改善黑色素瘤护理服务的关键领域.
主要方法:
- 使用经过验证的问卷 (SCNS-SF34,SCNS-M12,SCNS-P&C,MCQ-28,FCRI-9,QLQ-C30,DASS-21) 来评估支持性护理需求.
- 采用多变量分步后勤回归来识别与未满足需求相关的因素.
- 收集关于服务使用和偏好的数据.
主要成果:
- 超过75%的患者和护理人员报告至少有一个未满足的需求.
- 心理和情感福祉需求最为普遍,访问心理学家是最受欢迎的服务.
- 晚期患者报告说,与早期患者相比,更多的未满足需求和功能不佳.
结论:
- 澳大利亚黑色素瘤患者和护理人员之间存在大量未满足的支持性护理需求,特别是在心理和情感领域.
- 建议将心理支持服务和患者报告的结果措施纳入常规护理.
- 解决这些需求可以改善受黑色素瘤影响的个体的整体福祉.
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