患者对轴性脊柱关节炎患者教育的需求:一种定性研究
Yvonne M van der Kraan1, Davy Paap2,3, Niels Lennips2
1Department of Rheumatology and Clinical Immunology, University Medical Center Groningen, University of Groningen, PO Box 30 001, 9700 RB, Groningen, The Netherlands. y.m.van.der.kraan@umcg.nl.
Rheumatology and therapy
|July 31, 2023
概括
对轴性脊椎关节炎 (axSpA) 的患者教育应侧重于预后,治疗和自我管理指导. 与自我教育相结合的面对面互动是首选的,考虑到个人对疾病的看法,以有效管理.
科学领域:
- 类风湿病学 类风湿病学
- 患者教育 患者教育
- 定性研究是指质量研究.
背景情况:
- 根据EULAR的建议,患者教育 (PE) 是管理轴性脊柱关节炎 (axSpA) 的基础.
- 对axSpA教育需求的定性研究有限,需要进一步探索.
研究的目的:
- 调查患者在轴性脊柱关节炎 (axSpA) 的经验和教育需求.
- 确定 axSpA 管理中有效的患者教育的关键组成部分.
主要方法:
- 现象学方法采用20名axSpA患者的半结构深度访谈.
- 采用了主题分析,通过数据和,三角化和成员检查来提高可信度.
主要成果:
- 出现了三个主题:疾病感知,内容和PE的可用性.
- 关键的教育内容包括预后,治疗和自我管理指导;以自我教育为补充的面对面PE为首选.
- 针对亲属的量身定制信息和信任的患者-医疗保健专家关系对于有效的PE至关重要.
结论:
- 在axSpA中有效的PE需要解决预后,治疗和自我管理,整合面对面和自我教育模式.
- 将患者的疾病感知纳入PE是优化应对策略和管理的关键.
- 研究结果为开发 axSpA. axSpA. 的未来患者教育指南提供了宝贵的见解.
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