报告与儿童和青少年参与儿科研究的活动:一个框架分析
Jennifer Preston1, Giovanni Biglino2, Victoria Harbottle3,4
1Institute of Life Course and Medical Sciences, University of Liverpool, Liverpool, UK. jennifer.preston@liverpool.ac.uk.
Research involvement and engagement
|July 31, 2023
概括
报告的患者和公众参与 (PPI) 与儿童和青少年 (CYP) 在健康研究是不一致的. 这项研究发现,大多数报告缺乏细节,阻碍了对有意义的CYP参与的进展.
科学领域:
- 儿童健康研究 儿童健康研究
- 患者和公众参与 (PPI)
- 研究报告标准 研究报告标准
背景情况:
- 越来越强调患者和公众参与健康研究设计和交付.
- 对儿童和青少年 (CYP) 如何参与研究实践的理解有限.
- 需要在儿童健康研究中改进PPI的报告.
研究的目的:
- 评估国家卫生和护理研究院 (NIHR) 资助的儿童健康研究中CYP参与的报告.
- 了解CYP参与研究的机会和现实.
- 识别报告中的差距,以告知未来的PPI实践.
主要方法:
- 适应现有框架,包括GRIPP2SF和NIHR报告期望.
- 分析了NIHR儿童健康研究报告,用于PPI报告,使用参与矩阵和分析框架.
- 通过与医疗保健专业人员和CYP共同设计研讨会来改进工具.
主要成果:
- 只有19%的审查报告 (32/169) 包含了与CYP有关的PPI报告.
- 报告质量的显著变化;只有12%的人符合完整的报告标准.
- 最常见的参与方法是通过现有小组 (72%);PPI的正式评估很少 (9%).
结论:
- 在NIHR资助的研究中报告与CYP的PPI是不理想的.
- 缺乏详细的报告限制,以推进CYP的有意义的PPI.
- 需要实用工具和指导来改善对CYP参与的严格报告.
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