父母对临床医生的严重疾病沟通方法的看法:一种定性研究
Nicholas Mills1,2, Megan Chapman3, Ingrid Sutherland1
1Department of Neurodevelopment and Disability, The Royal Children's Hospital Melbourne, Parkville, VIC, Australia.
患有生命限制疾病的儿童的父母希望临床医生在严重疾病沟通期间建立信任并提供诚实,富有同情心的信息. 了解这些家长的需求对于有效的儿科医疗保健讨论至关重要.
科学领域:
- 儿科缓和护理 儿科缓和护理
- 临床交流 临床沟通
- 定性研究是指质量研究.
背景情况:
- 当与儿童家庭讨论严重疾病时,有效的沟通至关重要.
- 在严重疾病期间,父母对临床医生沟通的看法尚未完全理解.
研究的目的:
- 探索家长对临床医生沟通方法的看法,在严重疾病对话中.
- 从父母的角度来看,确定有效的严重疾病沟通的关键要素.
主要方法:
- 探索性定性设计,使用主题分析.
- 与儿童的父母进行半结构面试,这些孩子的生命条件有限.
- 使用假设的短片来引起家长对严重疾病沟通的看法.
主要成果:
- 父母强调通过检查,验证,对准希望,倾听和存在来"奠定基础".
- 父母强调通过诚实,同情,提出可能性,规划和分享临床医生的经验来"帮助信息传递".
- 11名7个月至18岁儿童的家长参加了这次活动.
结论:
- 临床医生在严重疾病对话中提供信息之前,应该优先考虑建立关系和信任.
- 在儿科医疗保健中,在严重疾病传播之前和期间,必须认识到父母的需求.
- 有效的严重疾病沟通需要基本要素和熟练的信息传递.
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