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俄罗斯版修订的肌缩侧面硬化功能评级表 (ALSFRS-R) 的有效性和可靠性

Lev Brylev^1,2,3, V S Demeshonok⁴, A I Ataulina⁵

¹Bujanov Moscow City Clinical Hospital, Moscow, Russia. lev.brylev@gmail.com.

Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology

|August 1, 2023

概括

这项研究验证了俄罗斯版本的"复杂性侧面硬化功能评分尺度-修订 (ALSFRS-R) ". 俄罗斯ALSFRS-R是评估俄语患者ALS进展的可靠工具.

科学领域:

神经学神经学
临床评估临床评估

背景情况:

肌缩侧面硬化症 (ALS) 是一种进展性神经退行性疾病.
准确的评估工具对于监测疾病进展和治疗疗效至关重要.

研究的目的:

开发和验证一个俄罗斯语言版本的肌缩侧面硬化功能评分尺度-修订 (ALSFRS-R).
确保俄罗斯ALSFRS-R为俄语ALS患者提供可靠和有效的措施.

主要方法:

俄罗斯版本的ALSFRS-R被翻译和文化调整.
50名ALS患者完成了俄罗斯ALSFRS-R两次,间隔7天.
分析了测试复试可靠性和内部一致性.

主要成果:

试验复试分析显示,所有ALSFRS-R变量之间存在非常强的相关性.
发现类内相关系数 (ICC) 为0.83,表明可靠性很高.
俄罗斯ALSFRS-R的内部一致性也得到了确认.

结论:

开发的俄罗斯版本的ALSFRS-R是一个有效和可靠的仪器.
它与最初的英语版本相似,用于评估ALS患者的功能状态.
该工具将有助于在俄语人口中对ALS的临床管理和研究.

关键词:

在ASLFRS-R中,它是最重要的.可靠性可靠性可靠性俄罗斯版本俄罗斯版本有效性有效性是有效性的.

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